Health Care Guidelines

Health care guidelines help define the standards of quality care for individuals with Down syndrome.

In 2011 the American Academy of Pediatrics (AAP) published a clinical report in the journal Pediatrics (Vol. 128, No. 2, August 1, 2011. pp. 393 -406) called “Health Supervision for Children with Down Syndrome" which can be downloaded below. The recommendations were reaffirmed in January 2018.

Based on this publication, the AAP developed a helpful medical guide called “Health Care Information for Families of Children with Down Syndrome." This can also be downloaded below. 

These guidelines help define the standards of quality care for individuals with Down syndrome. In addition to specific recommendations for screening tests, they include information about the kinds of medical conditions that individuals with Down syndrome are at risk for and suggestions for early intervention, diet and exercise, and other issues across the lifespan.

This document focuses on medical topics that affect physical health. The medical issues for a child with Down syndrome change with age. For this reason, the document includes checklists by age spanning the prenatal period through age 21.

Health Care Information for Families of Children with Down Syndrome

This helpful checklist-style health care guide is organized by age from birth to 21, addressing the relevant medical issues in each age group.

Health Supervision for Children with Down Syndrome

The full clinical report published in the journal Pediatrics to assist the pediatrician in caring for a child with Down syndrome. The Health Care Information for Families of Children with Down Syndrome was based on this report.

Growth Charts for Children with Down Syndrome

Because children with Down syndrome tend to have lower birth weights and grow more slowly than children without Down syndrome, it is helpful to track their growth on charts specific for them.

GLOBAL Medical Care Guidelines for Adults with Down Syndrome

The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome.

GLOBAL Medical Care Guidelines Checklist

A helpful checklist adapted from the GLOBAL Medical Care Guidelines for Adults with Down Syndrome which can be used by adults with Down syndrome, their parents/caregivers, and medical professionals to support the health of adults with Down syndrome.